Details TBD

Please join us for the mgMN support group meeting on Saturday February 15, 2025 at 1:00pm on Zoom 

Agenda

 Welcome and Announcements New Member introductions and/or brief introductions

 Meeting Topic: Open meeting - bring questions, etc.

Next meeting is March 15, 2025 

 Looking forward to seeing everyone!

Topic: mgMN Support Group Meeting Join Zoom Meeting https://us02web.zoom.us/j/8010998271 

 Meeting ID: 801 099 8271 --- 

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Details TBD

Dear MG Minnesota Support Group Members,

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

     The MG Minnesota Board invites you to the December Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, December 21, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower will be leading the gathering. The Zoom link is found at the end of this message. Please note:  you may need to enter a passcode to enter the meeting.  The passcode is found immediately below the meeting link.

    This month we will view a video from Kristin Neusel on nutrition.  (Quite timely given we are in the holiday season!)  

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: December 2024 MG Minnesota Support Group

Time: Dec 21, 2024 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/87229832414?pwd=JgnpWmRalcEdONq87cSo5MEoOmzaBH.1

Meeting ID: 872 2983 2414

Passcode: 609255

Details TBD

Dear MG Minnesota Support Group Members,

      Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MG Minnesota Board invites you to the October Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, October 19, starting at 1 pm.  The gathering will last no longer than 2 hours  Diane Tower will be leading the gathering. The Zoom link is found at the end of this message. Please note:  you may need to enter a passcode to enter the meeting.  The passcode is found immediately below the meeting link.

      This month we will discuss the presentations from our conference on September 28.  If time permits, we will also have an open forum.  Please bring your questions, concerns, and insights about Myasthenia Gravis. 

Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: Oct 19, 2024 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/82106111167?pwd=aaUj7xW6f9YHamTMfc9QDNbg8D8lSt.1

 Meeting ID: 821 0611 1167

Passcode: 264031

 ---

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Diane Tower, chair

Monica St. Germain, treasurer

Dear Myasthenia Gravis Support Group,

     Thank you for your continued support of the vital support group. 

     We are looking forward to seeing you either in person or via Zoom at this year’s annual conference on Saturday, September 28, 2024.  See the attached documents for more details and registration information.

     If you have any questions, concerns, or comments, please feel free to contact Monica St. Germain at mstgerm@embarqmail.com .

Monica St. Germain, treasurer

Myasthenia Gravis, Minnesota

Click for Detailed Information

Click here for the Agenda

Click here for the Registration Form

Details TBD

Details TBD

Join Zoom Meeting

https://us02web.zoom.us/j/83118718583?pwd=ekdJUlhOcEYyRThjUnViY2EreFIrdz09

 Meeting ID: 831 1871 8583

Passcode: 043739

 ---

 One tap mobile

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Dear MG Minnesota Support Group Members,

           Thank you for being a loyal and supporting member of Myasthenia Gravis Minnesota.  Our organization is strong because of your continuing support.

 Please join your fellow support group members via Zoom at 1:00 PM this Saturday, May 18.  Our speaker will be Dr. Gaurav Guliani from HealthPartners Neuroscience Center.  He will be discussing sunscreen and skin cancer and its relationship to Myasthenia Gravis.

We are looking forward to seeing you.

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: Myasthenia Gravis Support Group

Time: May 18, 2024 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/83118718583?pwd=ekdJUlhOcEYyRThjUnViY2EreFIrdz09

 Meeting ID: 831 1871 8583

Passcode: 043739

 ---

 One tap mobile

+13052241968,,83118718583#,,,,*043739# US

Diane Tower, chairperson

Monica St. Germain, treasurer

ReplyReply allForward

Dear MG Minnesota Support Group Members,

           It is finally here!

           Our April support group meeting is in hybrid mode!  Please join your fellow support group members either virtually or in person at 1:00 PM this Saturday, April 20. Our speaker will be Colleen Stoyas from UCB who will discuss the new drug, Rystiggo, for generalized Myasthenia Gravis.

          We will meet at St. Joseph the Worker Catholic Church, 7180 Hemlock Lane, Maple Grove, MN  55369.  The church is located very near the freeway intersections of 494/694/94 in the northwest suburbs, heading towards St. Cloud.  The Arbor Lakes Shopping area is a few blocks from the church. 

           More specific directions:  using either 94 south (from the St. Cloud area), 694 west (from Minneapolis/St. Paul and northern suburbs), or 494 (from Plymouth/Eden Prairie/Bloomington), stay on 694.  At Exit 28 on 694 (either east or west bound), turn left.  The church is just past the Perkins (on your left), about 2 blocks.  Please enter the facility through Door 2.   Signs will be posted to direct you.  A funeral luncheon will most likely be occurring in our hall so don’t worry if there are a few cars in the parking lot.  Once inside Door 2, proceed to the hallway on your right.  We will be in classroom #2, which will be on your right.

            For those of you joining via zoom, the link is below.

           We will also have some treats for the meeting, and, if the weather is nice, enjoy the great outdoors on the benches outside.

           We hope to see you!

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: Apr 20, 2024 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/88421571250?pwd=Tm5IWlZacUgvOUg2aWxseDg1OG9Sdz09

 Meeting ID: 884 2157 1250

Passcode: 632828

 ---

 One tap mobile

+13126266799,,88421571250#,,,,*632828# US (Chicago)

Diane Tower, chairperson

Monica St. Germain, treasurer

Details TBD

Dear MG Minnesota Support Group Members,

      Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MG Minnesota Board invites you to the February Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, February 17, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower will be leading the gathering. The Zoom link is found at the end of this message. Please note:  you may need to enter a passcode to enter the meeting.  The passcode is found immediately below the meeting link.

       Hopefully, Dr. Guiliani from Health Partners will be joining us to talk about MG and exercise.  Let’s also plan on discussing how your caregiver/partner/family helps you manage your MG.

      We are looking forward to seeing you.

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Support Group Meeting

Time: Feb 17, 2024 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/85946067689?pwd=Wm1vL0swQkJIVkVsV2J4eE1IZkMyZz09

 Meeting ID: 859 4606 7689

Passcode: 316800

Dear MG Minnesota Support Group Members,

      Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MG Minnesota Board invites you to the January Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, January 20, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower will be leading the gathering. The Zoom link is found at the end of this message. Please note:  you may need to enter a passcode to enter the meeting.  The passcode is found immediately below the meeting link.

       In addition to our usual discussion about Myasthenia Gravis and its effect on our lives, Monica St. Germain will discuss how Myasthenia Gravis treatment was a contributing factor to her husband’s (Bud Brown) death.

      We are looking forward to seeing you.

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: Jan 20, 2024 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/85909768645?pwd=Q2FVdndJUEVtTHlIZ2luN0ZLVkh3dz09

 Meeting ID: 859 0976 8645

Passcode: 226679

 One tap mobile

+19294362866,,85909768645#,,,,*226679# US (New York)

+13017158592,,85909768645#,,,,*226679# US (Washington DC)

Diane Tower, chair

Monica St. Germain, treasurer

Details TBD

Details TBD

Details TBD

ANNUAL CONFERENCE INFORMATION

This year our State Meeting and Conference will be on September 24, 2023. We will be having the meeting on Zoom this year.

We are looking forward to seeing you again!

Our 2023 annual conference is this Sunday, September 24, via Zoom, starting at 9:00 AM and ending by 11:30 AM.  The Board of Directors is excited to present Ellie Roscher and Colleen Stoyas as our guest speakers.  (Please see the agenda below for their topics.)

    Below is the Zoom link for the meeting.  The meeting will officially start at 9:00 AM; the zoom link will be open shortly before that time in case there are any technical issues.

     If you have any questions or concerns, please feel free to contact us.

Diane Tower, president

Monica St. Germain, treasurer

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: MG Minnesota Conference

Time: Sep 24, 2023 09:00 AM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/82879874510?pwd=UzZuYzhJY1VWUExrMG0zUk9rdGtqUT09

Meeting ID: 828 7987 4510

Passcode: 299860

One tap mobile

+16469313860,,82879874510#,,,,*299860# US

mgMN Eighth Annual State Meeting and Conference Agenda September 24, 2023 Zoom

Welcome 9:00-9:10 AM Diane Tower

Door Prize 9:10 AM Monica St. Germain

Business Meeting 9:10 - 9:30 AM Diane Tower

Ellie Roscher Author and Motivational Speaker “The Embodied Path” 9:30-10:30 AM Ellie Roscher

Dr. Guiliani “Acupuncture Study Update and MG and Exercise” 10:30 – 10:45 AM Dr. Guiliani

Door Prize* 10:46 AM Monica St. Germain

Colleen Stoyas, PhD UCB Inc. U.S. Medical Affairs “The Biology of Myasthnia Gravis” 10:50 – 11:30 AM Colleen Stoyas

Door Prize* 11:30 AM Monica St. Germain

Meeting Wrap-up 11:30 AM Diane Tower

*A Big Thank You to Optum Infusion for providing our door Prizes this year.

Dear MG Minnesota Support Group Members,

      Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MG Minnesota Board invites you to the August Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, August 19, starting at 1 pm.  The gathering will last no longer than 2 hours.  Monica St. Germain, treasurer, and Pete Engler, secretary, will be leading the gathering. The Zoom link is found at the end of this message.

        It has been a while since we discussed what it is like to live with MG, especially in the summer in Minnesota.  This month’s topic will be an open discussion about living with MG.  I encourage your caregiver to join you so that their perspective is heard.

      Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: Aug 19, 2023 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/89328879466?pwd=OE9VazlWcUJiYng5Sk5LZ0plRld6dz09

 Meeting ID: 893 2887 9466

Passcode: 219215

 One tap mobile

+13092053325,,89328879466#,,,,*219215# US

+13126266799,,89328879466#,,,,*219215# US (Chicago)

Peace,
Monica St. Germain, treasurer

MG Minnesota

The MG Support group from the State of Georgia extended this invitation. Please note that the information is stated in Eastern Time Zone so adjust accordingly. In addition, you must register in advance using the link below.

MG Community,

Monday, August 7th Georgia Support Group Meeting. We will have a great meeting with several very special guest speakers. You do not want to miss this meeting. 6:00 PM - 8:00 PM

Our guest speakers from UCB Pharmacy will discuss the new U.S. Food and Drug Administration approved RYSTIGGO® (rozanolixizumab-noli) for the treatment of generalized myasthenia gravis (gMG) in adult patients who are anti-acetylcholine receptor (AChR) or anti-muscle-specific tyrosine kinase (MuSK) antibody positive.1 

Please see more information at www.RYSTIGGO.com 

Omar Sinno MD, MBA is the U.S. Medical Strategy Lead for Rare Disease at UCB.  He is a physician by training and moved from clinical medicine into the early-stage start-up world with a focus on neuromuscular disease. 

Since joining UCB in July 2020, his primary focus has been setting the strategic medical direction for UCB’s rare disease pipeline and portfolio, including the development and commercialization of two assets for the treatment of generalized myasthenia gravis.  Omar is committed to helping advance unique solutions for people living with rare diseases. His hometown is Chicago, and he currently resides in Atlanta.

Ericka V. Hylick, Pharm.D. is a Patient Advocacy Liaison in Rare Disease with focus on gMG at UCB. She is a pediatric pharmacist by training and education. After working as a hospital and academic pharmacist for the first portion of her career, Ericka moved over to the pharmaceutical industry almost ten years ago. She has since been dedicated to medical education, health education and corporate affairs efforts that improve patient experience, access, and education. In her role, she is a dedicated east coast field-based resource assigned to gather, understand, and work to minimize the educational gaps for HCP’s, patients, and caregivers living in the gMG community.

We will also have from Functionize Health & Physical Therapy Ashleigh Tompa DPT and Jake Reynolds DPT

Zoom meeting details

Register in advance for this meeting:
https://us06web.zoom.us/meeting/register/tZArceiuqjMsGtBCzTNNGorito3jN_c2qMVz

After registering, you will receive a confirmation email containing information about joining the meeting.

The MG Minnesota Board invites you to the July Support Group meeting.  The meeting will be held via Zoom only. The meeting is this Saturday, July 15, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

       Our presenter for this month will be Amanda Herrmann from HealthPartners Neuroscience.  She leads the study on acupuncture and Myasthenia Gravis.  She will be giving us an update on the status of the project and preliminary findings.  Preview: last month Ann Miller shared that she felt acupuncture really helped her.  Perhaps we will learn more!

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: MG Minnesota Support Group

Time: Jul 15, 2023 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/86389060568?pwd=bEd5allubXhvVXFiVVJkajA3QnhtZz09

Meeting ID: 863 8906 0568

Passcode: 425073

One tap mobile

+16469313860,,86389060568#,,,,*425073# US

+19294362866,,86389060568#,,,,*425073# US (New York)

Peace,
Monica St. Germain, treasurer

MG Minnesota

Dear MG Minnesota Support Group Members,

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MGMinnesota Board invites you to the June Support Group meeting.  We are excited to announce that this month’s meeting will be in-person and also via Zoom. (The meeting is this Saturday, June 17, starting at 1 pm.)  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message as is the name and address of the place for those of you who wish to attend in person.

        The recent edition of Brain and Life has an article on anxiety, especially upon people with neurological disorders.  I found it to be very interesting and I hope spark a great deal of discussion for all attending.

      We look forward to seeing you either in person or via Zoom on Saturday.

In-Person Location:

St. Joseph the Worker Catholic Church

7180 Hemlock Lane North

Maple Grove, MN.  55369

     The church is very near the intersection of 494/694/94 as you are driving to St. Cloud.  Maple Grove’s Arbor Lakes Shopping district is very near.  Most people use the Hemlock Lane exit to access the church (about 3 blocks from the freeway).

      Please enter the church via Door #2.  A sign directing you to classroom #2 will be on the door.  There are no stairs or great distances involved in getting to the classroom.  Handicap parking is very near the door.

Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Monthly Support Group

Time: Jun 17, 2023 01:00 PM Central Time (US and Canada)

 Join Zoom Meeting

https://us02web.zoom.us/j/84387854021?pwd=S0NySExQbzE3U3lUaEQzMzRUSXl0QT09

 Meeting ID: 843 8785 4021

Passcode: 631611

One tap mobile

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+13092053325,,84387854021#,,,,*631611# US

Peace,
Monica St. Germain, treasurer

MG Minnesota

Dear MG Minnesota Support Group Members,

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MGMinnesota Board invites you to the April Support Group meeting this Saturday, May 20, starting at 1:00 PM.  This month’s meeting will be Zoom only.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

      This month’s discussion topics will be a surprise.

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: May 20, 2023 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/85876036019?pwd=L3VmbEVDM2dtdC9SN1Vmd01SSmM0UT09

Meeting ID: 858 7603 6019

Passcode: 400223

One tap mobile

+13052241968,,85876036019#,,,,*400223# US

+13092053325,,85876036019#,,,,*400223# US

Peace,
Monica St. Germain, treasurer

MG Minnesota

Dear MG Minnesota Support Group Members,

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MGMinnesota Board invites you to the April Support Group meeting this Saturday, April 15, starting at 1:00 PM.  This month’s meeting will be Zoom only.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

      This month’s discussion topics will be a surprise.

 Monica St. Germain is inviting you to a scheduled Zoom meeting.

 Topic: MG Minnesota Support Group

Time: Apr 15, 2023 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/85876036019?pwd=L3VmbEVDM2dtdC9SN1Vmd01SSmM0UT09

Meeting ID: 858 7603 6019

Passcode: 400223

One tap mobile

+13052241968,,85876036019#,,,,*400223# US

+13092053325,,85876036019#,,,,*400223# US

Peace,
Monica St. Germain, treasurer

MG Minnesota

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The mgMinnesota Board invites you to the March Support Group meeting via Zoom this Saturday, February 18, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

     If you will be using Zoom on your cell phone, download the app from your cell phone provider's app store.  It is free.

     If you have any questions please feel free to contact Diane Tower or me.

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: MG Minnesota Support Group

 Join Zoom Meeting

https://us02web.zoom.us/j/82704446269?pwd=N2FERkNUY3l4b25qdEFNSWhtL0xNZz09

Meeting ID: 827 0444 6269

Passcode: 329011

One tap mobile

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+13017158592,,82704446269#,,,,*329011# US (Washington DC)

Dear mg Minnesota Support Group Members,

     We are looking forward to seeing you on Saturday!

     Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The mgMinnesota Board invites you to the February Support Group meeting via Zoom this Saturday, February 18, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

       We have several topics planned for this meeting.  First, Harold Johnson will present information and a demonstration on in-home dialysis.  Second, there are two articles from recent issues of Brain and Life (brainandlife.org) that may be of interest to the group.  The links to the articles are:

 Chris Hemsworth pushes boundaries

https://www.brainandlife.org/articles/chris-hemsworth-pushes-limits-learn-how-brain-body-age

Ultra-processed foods and Dementia

https://www.brainandlife.org/articles/eating-ultra-processed-foods-may-increase-risk-of-dementia

     If you will be using Zoom on your cell phone, download the app from your cell phone provider's app store.  It is free.

     If you have any questions please feel free to contact Diane Tower or me.

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: MG Minnesota Support Group

Time: Feb 18, 2023 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/82704446269?pwd=N2FERkNUY3l4b25qdEFNSWhtL0xNZz09

Meeting ID: 827 0444 6269

Passcode: 329011

One tap mobile

+19294362866,,82704446269#,,,,*329011# US (New York)

+13017158592,,82704446269#,,,,*329011# US (Washington DC)

January 2023 Zoom Support Group Meeting. Details will be posted on Facebook page

Join Zoom Meeting

https://us02web.zoom.us/j/85603995393?pwd=SFlIOEJCaFFGdVFhTzc0RXJJMlRTZz09

Meeting ID: 856 0399 5393

Passcode: 018648

One tap mobile

+13126266799,,85603995393#,,,,*018648# US (Chicago)

+16469313860,,85603995393#,,,,*018648# US

Thank you for being a member of this very important support group.  Staying connected is so important to our health and well-being.

      The MGMinnesota Board invites you to the December Support Group meeting via Zoom this Saturday, December 17, starting at 1 pm.  The gathering will last no longer than 2 hours.  Diane Tower, the organization's chairperson will be leading the gathering, I will be the Zoom host.  The Zoom link is found at the end of this message.

      Our guest speaker will be Shelly Gerson from Argenx.  Her topics will be

 PREPARING FOR APPOINTMENTS

Intentionally preparing for your appointments may help you to

confidently communicate your goals and needs with your doctor

during your short time with them. In this module, we will discuss

different appointment preparation methods.

MANAGING MG SYMPTOMS

It may be difficult to get your concerns across during appointments

with your doctor. We will learn about and practice using tools that may

help you track and explain your symptoms to your healthcare team.

     If you will be using Zoom on your cell phone, download the app from your cell phone provider's app store.  It is free.

      If you have any questions please feel free to contact Diane Tower or me.

Monica St. Germain is inviting you to a scheduled Zoom meeting.

Topic: Myasthenia Gravis Support Group

Time: Dec 17, 2022 01:00 PM Central Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/85603995393?pwd=SFlIOEJCaFFGdVFhTzc0RXJJMlRTZz09

Meeting ID: 856 0399 5393

Passcode: 018648

One tap mobile

+13126266799,,85603995393#,,,,*018648# US (Chicago)

+16469313860,,85603995393#,,,,*018648# US

Peace,
Monica St. Germain, treasurer

MG Minnesota

Monthly Zoom Support Group Meeting. Zoom information will be sent via email and posted on our Facebook page