News
According to a media release by AstraZeneca on April 28, 2022,
WILMINGTON, Del., April 28, 2022 – ULTOMIRIS® (ravulizumab-cwvz) has been approved in the US for the treatment of adult patients with generalized myasthenia gravis (gMG) who are anti-acetylcholine receptor (AChR) antibody-positive, which represents 80% of people living with the disease.
Here is a link to the media release for more information Click HERE for Link
The U.S. Food and Drug Administration on December 17 approved Vyvgart (efgartigimod) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) antibody.
Click HERE to access the press release for more information.
Please ask your doctor is this therapy is right for you.
Dear MG Minnesota Conference Attendees,
Thank you for attending the fifth annual conference this past Sunday. It was wonderful to see your faces and listen to your questions.
At the bottom of this post are the documents that David Hughes, the physical therapist mentioned.
Here are the links to David’s and Josh’s presentations. Please feel free to share the link with people you think would be interested in these videos. They are NOT on YouTube. Please do not make them available for the entire world to view. If you would like to re-listen to Dr. Guliani’s quick presentation, please send me a note and I will send you the link, when I receive permission from him.
David Hughes, physical therapist
Josh Frederickson, “Living Better with MG” https://us02web.zoom.us/rec/share/3fJhvYWW2NQ5wirS_sghAO8gmI2FggwcLd04igLE40sOjUuG_4VpdSjPMet9aGPq.WbjO6xhCwVGyvLIt?startTime=1632668222000
Again, thank you for attending the conference. We hope to see you in 2022.
We are sad to report the passing of Lianne Anderson
She had MG since 1975. She began serving on the MGFA Minnesota Chapter Board of Directors in the late 1970’s and chaired the Twin Cities Support Group since its inception. She also served as Chair of Fundraising with efforts to bring in a sustainable amount for the chapter and for the newly formed mgMN organization. Lianne and her mother Millie established The Anderson Fund in honor of her late father Irv. The Anderson Fund is an active account within mgMN and is used to support the mission of Myasthenia Gravis Minnesota.
Her obituary is linked below and asks for donations to the mgMN Anderson Fund. If you wish to honor Lianne with a donation to our organization, please send a check made out to Myasthenia Gravis Minnesota and put Anderson Fund in the comments. Send a check to:
Monica St. Gernain (mgMN Treasurer)
16511 Lake Ridge Drive
Maple Grove, MN 55311
Harbour BioMed‘s HBM9161 was found to be safe and effective at reducing the levels of autoimmune disease-associated antibodies in many disorders, including myasthenia gravis, a Phase 1 trial shows. In autoimmune diseases such as myasthenia gravis, a type of antibody known as immunoglobulin G (IgG) attacks the body’s own cells and tissues, breaking down normal communication between……
The National Institutes of Health (NIH) has awarded $7.8 million for the launch of a rare disease network, called MGNet, to drive research in myasthenia gravis and which will be led by experts from George Washington University, Yale University, and Duke University.
Ra Pharmaceuticals is preparing to launch a Phase 3 clinical trial to assess the therapeutic potential of zilucoplan for the treatment of patients with generalized myasthenia gravis (gMG). This comes after the company’s completion of End-of-Phase 2 interactions with the FDA
Fundraising for the third Annual Meeting and Conference
September 23, 2018
We are having the “Bucket Raffle” again. If you are not familiar with a Bucket Raffle, it is similar to a silent auction only instead of bidding on items you purchase raffle tickets and place the tickets in the bucket of the item that you want to win. There will be one winning ticket drawn per bucket. Place tickets in as many buckets as you would like. The more tickets that you place in any bucket, the greater your chances are to win the item.
The costs of the tickets are:
No. of Tickets Cost of Tickets
5 $ 5.00
12 $ 10.00
25 $ 20.00
Tickets will be available for purchase at the conference. No limit on the number of tickets you can purchase.
We still need raffle items…
If you would like an idea or have an item, call Shirley Kramer at 612-240-3100.
Brunch Menu:
We are having a build your own sandwich buffet. It includes assorted breads, turkey, ham, roast beef, three cheeses, lettuce, tomato, potato chips, pickles, pasta salad, and a fruit plate.
We encourage you to invite your family and friends to the conference. It is a chance for them to learn about Myasthenia Gravis and help raise funds for MG.
DOOR PRIZES
There will be door prizes throughout the conference, including a door prize for whoever brings the most guests with them.
Keynote Speaker
Dr. Kiesling will be speaking on the new medication, Soliris from her perspective as a patient. She is a member of the Brainerd MN MG support group.
We hope to see you at the conference!
Note: Medical information included on this website comes from sources that are noted along with the information. Citing a source on this website does not imply an endorsement by Myasthenia Gravis Minnesota, Inc. (mgMN). Always consult your physician, pharmacist, nurse or other health care professional for advice and expertise regarding the care that is best for you.
